Little Red Stories
One week after Leevi and his twin brother celebrated their second birthday Leevi got sick. On August 25, 2017 Leevi was taken to a local emergency because he was inconsolable and vomiting. Thankfully, the doctor that was working ordered a CT Scan that showed a mass in Leevi's brain. Leevi had to endure the pain of having an intraosseous line placed due to dehydration. Leevi was then flown to Janet Weis Children's Hospital for fear of increased intracranial pressure. Leevi remained stable and received Neurosurgery on August 28, 2017 that lasted seven grueling hours. a few hours later we received the Pathology report that turned our world upside down: Leevi had brain cancer (grade 3 Anaplastic Ependymoma). Leevi was stable following neurosurgery but physically was back at square one. Leevi could no longer hold his head up independently, pull himself up to a standing position, feed himself or walk. Leevi started vigorous PT and OT. During this time we met up with his Radiologist and Oncologist to come up with a game plan. Two days after neurosurgery Leevi was discharged from the hospital but we remained on site for the following three months at our local Ronald McDonald House. For the next three months family members cared for our other two children; Aiden aged 6 and Wiatt aged 2 while we gave Leevi every fighting chance we had. Two weeks post-op Leevi went back under general anesthesia to have his Mediport placed for his upcoming treatments. Two weeks after his port was placed Leevi started his cycle of 33 intense radiation treatments to his Posterior Fossa. Leevi fought through the radiation but had a very hard time with the Chemotherapy treatments that followed! Leevi lost weight, was constantly nauseous, vomited, and his blood counts plummeted leaving him with virtually no immune system. He spent the next few month fighting for his life while his father and i helplessly watched. Leevi is a very strong little boy. He fought his brain cancer head on and WON! Leevi is currently in remission but his battle is far from over. Leevi has to have MRI's performed every 3-4 months due to the aggressive nature of the cancer. Every other scan will be done under general anesthesia and last approximately five hours because his brain and entire spinal column has to be scanned. The other scans will be shorter and done under sedation and will only scan his brain. During Leevis's extensive treatment regimen and hospitalizations the only thing he enjoyed and looked forward to was his wagon rides around the hospital. Of course, Leevi had to wear a mask to protect him from germs but he didn't mind at all because he got to leave his hospital room! His leisurely wagon rides were the only thing that gave Leevi a sense of "normalcy" during the most trying time of his two short years of life! Our family is currently planning a trip to Washington, D.C. to attend the annual CERN Foundations butterfly release to celebrate Leevi and many other children who had to endure brain cancer and its many unpleasant side effects and treatments. Our family will be purchasing a wagon from the Radioflyer company for our trip so that Leevi can be as comfortable as possible and save his energy. Janet Weis Children's Hospital in Danville, Pennsylvania would be a very deserving recipient of the Wagons for Good. The facility treats a large number of patients each year. Some include surgical patients, oncology patients as well as NICU/ICU patients. Thanks you for this amazing opportunity! God Bless.
When I was a single parent with 1 chId, I bought a radio flyer wagon for my daughter ‘s birthday. I didn’t have a car so I walked everywhere pulling my daughter in her wagon, Then a few years later I had another child and I pulled my 2 children in the wagon everywhere. I used my wagon for everything. By 1989, my sister had one child and I had my 3rd child, we used my wagon for everything from walking to the grocery store with my children, to going to the laundromat with the wagon piled high with clothes. My wagon was my automobile without a motor in the late 80’s to late 90’s. We wore out 3 of these wagons in the time we had them before I could afford to buy a vehicle. My father had bought a weapon to use to pull the kids, walk to the grocery store to buy food for my mother and hisself for so many, many years and I believe he went through 3 or 4 of them. I just wish I could afford a couple of these because my husband and ou have 20 grandchildren together (ours,his,and mine). Thank you Radio Flyer are great and long lasting.
"Look! One of her legs is shorter than the other!" exclaimed my grandfather in what would be the beginning of my spica cast journey to correct congenital hip dysplasia at 13 months of age. A few surgeries and a kid in a cast and traction bars didn't scare my mother as much as being home alone for days or weeks on end without the ability to go anywhere or see anyone. Thankfully she married an ingenious engineer who modified a radio flyer red wagon so that the sides extended out and I could go in, cast and all. We trekked everywhere in that red wagon, and now, 28 years later, family and friends can still recall how happy our family looked all together with me being toted around in our wagon.
My son Joshua was born preemie he was 1 lb 11ozes 12inches .He had to travel to Rilys children hospital alot in Indianapolis.They had a redflyer wagon that you could use to pull kids back and forth to there diffrent appointment s in the hospital .plus to take your stuff to there room or to a restaurant in the hospital .sences he was little i would pull him around the halls he loved that alot .I got him a redflyer trike when he was 5 but got stolen but hed ride up and down are side wAlks .
I remember when I was 13 years old and my mother became very ill. She had a little girl (3) and a boy (1 1/2) to take care of. I would take my brother and sister for walks up and down, up and down, etc... (you get the idea) on Willowbrook Road in our Radio Flyer wagon. This made them sooooo happy. I would keep them both busy for literally hours. This gave my mom a break so she could rest and heal. The Radio Flyer allowed me to entertain both kids at the same time. They got fresh air, sun and the bonding we did has made us close to this day. My brother had a son, Jesse, in 2016 and they have another one on the way. When Baby Jesse had his 1st Birthday I bought him a Radio Flyer Battery Powered Moto Racer. Now my brother spends quality time bonding with his son. The tradition continues. Thank you Radio Flyer for bringing good wholesome family standards to our family.
For the past three years I’ve purchased a Build a Gift Wagon for Babies to donate to a silent auction. I’ve had Radio Flyer include a teddy bear, blanket, bib and rubber duck in the wagon. The wagon and items come wrapped in clear cellophane with a beautiful, large bow. After I receive the wagon I add a children’s book about Chicago that I put in the front. The Radio Flyer Wagon always generates a lot of bids! It shows well and individuals purchase it for their child, grandchild, niece, nephew or friend. The silent auction that I donate to is for the Chicago Engineers Foundation. Every year they give $1,000 scholarships to deserving Chicago high school seniors who plan to study engineering in college. The auction helps to raise additional money for these scholarships. I plan on continuing to purchase the Radio Flyer Wagon, for donations and for my family and friends.